人類處方藥物｜無法穿著系列™（The Unwearable Collection™）：沒人敢選的時尚 The Unwearable Collection™: A fashion line no one would dare choose
時尚通常有一個特別的目的：供人們購買和穿著的設計。但這並不適用在荷蘭設計師Bart Hess的「無法穿著系列™」（The Unwearable Collection™）。這個系列由四件作品展示了患有一種罕見的皮膚疾病全身型膿疱性乾癬（GPP）人們痛苦的經歷。
沒有人會選擇穿著它，但患有全身型膿疱性乾癬（GPP）卻別無選擇。當他們發作時，皮膚會感到搔癢、劇痛與灼熱，這些感覺會一直跟隨著他們。
「無法穿著系列™」中的四件雕塑作品是Bart Hess與百靈佳殷格翰攜手創作的，它們被刻意設計成一種充滿挑戰的視覺體驗。Hess先生在四個模特的身上運用了玻璃碎片、尖銳的刀片等材料，以引起人們對這種疾病的身體和社會影響的關注，而這些作品是從三位GPP患者 ── Christine、Brandon和Dale的訪談中獲得啟發的，他們生動地描述了疾病發作時的痛楚和影響。
身與心的痛苦
GPP是一種罕見且伴隨終身的皮膚疾病，其特性是突發的劇烈疼痛，以及全身充滿膿疱。這種疾病甚至會引起發燒、頭痛、關節痛、極度疲勞和皮膚灼熱感。GPP還影響人們面臨社交生活的受限、情緒低落以及對下一次發作的焦慮感。
這些症狀可以透過治療來緩解，然而，GPP往往未被正確診斷，嚴重的發作可能會對生命構成威脅。
「如果你真的想了解這個疾病對人們生活產生多大的影響，僅是聆聽是不夠的。」Hess先生表示：「藝術是詮釋那些受影響者痛苦的適當媒介。」
每個設計都代表著GPP患者生活中的核心體驗：身體上的疼痛、被孤立的心理痛苦、疾病的致命性與發作時的劇烈感受。
這個系列的目的是提高患有皮膚疾病者、皮膚科醫師與大眾對這罕見疾病的關注，進而達到減少誤診和延遲診斷。
關於藝術家
荷蘭國際知名藝術家和設計師Bart Hess，在荷蘭Design Academy Eindhoven學習。他以將人體與不尋常的材料結合的創新設計而聞名。Hess先生利用材料研究、動畫和攝影的超現實組合，通過他的藝術來講述現實世界的故事。
HUMAN PHARMA
The Unwearable Collection™:
A fashion line no one would dare choose
Fashion collections have a specific purpose: they are designed for people to buy and to wear. This isn’t the case with Dutch designer Bart Hess’s The Unwearable Collection™. The four-piece collection visualizes the painful experience of people living with generalized pustular psoriasis (GPP), a rare skin disease.
No one would choose to wear it. But people with generalized pustular psoriasis (GPP) have no other choice. Itching, sharp pain and a burning sensation on their skin are constant companions when experiencing a flare.
“Art is a very suitable medium to interpret the suffering of those affected.”
Bart Hess,
Artist
The four sculpted pieces in the Unwearable Collection™, which Bart Hess created in partnership with Boehringer Ingelheim, are by design a visceral challenge to behold. In garbing four fashion mannequins, Mr. Hess incorporated materials such as glass shards, sharp paper cutouts and knife blades to draw attention to the physical and social impact of the disease. The work was inspired by interviews with three people living with GPP — Christine, Brandon and Dale — who vividly described the pain and the impact when the disease flares up.
Physical and emotional pain
GPP is a rare, life-long skin disease, characterized by sudden flare-ups which produce painful, pus-filled blisters all over the body. The condition can also cause fever, headaches, joint pain, extreme fatigue and a burning sensation on the skin. People affected by GPP must also cope with an impaired social life, low energy levels and constant anxiety about when the next outbreak will come.
The symptoms can be alleviated through treatment. But too often, GPP goes undiagnosed. And extreme outbreaks can be life-threatening.
“If you want to really understand how much of an impact this disorder has on people’s lives, it’s not enough to simply listen to the people affected by it,” Mr. Hess says. “Art is a very suitable medium to interpret their suffering.”
Each design represents a core experience in the life of people affected by GPP: physical pain, the psychological pain of isolation, the life-threatening nature of the illness and the intensity of a flare-up.
The purpose of the collection is to raise awareness of this rare disease among people with skin diseases, dermatologists and the general public so that misdiagnoses and delayed diagnoses become a thing of the past.
About the Artist
Internationally renowned Dutch artist and designer Bart Hess studied at the Design Academy Eindhoven (The Netherlands). He is known for his innovative designs that combine the human body with unusual materials. Mr. Hess uses surreal combinations of material studies, animation and photography to tell real-world stories through his art.